Tutu Brothers
my partner in crime @HotelMelanoma as we work to #finishcancer a little laughter in a ALL to serious world of cancer pic.twitter.com/OQ0S3rPCYS
— Mark Williams (@melaphukanoma) September 15, 2016
Saturday, September 2, 2017
Senior Moments
I’ve been playing quite a lot of geezer golf this summer (rather badly, I should add) while succeeding in maintaining a death row inmate standard of paleness. But just the other day upon completion of another ‘soaring’ round I noticed that I was rather sunburned. This puzzled me more than a little. I could have sworn that I’d applied my usual copious dose of sunscreen before hitting the links. But on closer inspection of the bottle of lotion I’d tapped that morning, I discovered that I’d managed to use a zero SPF moisturizing lotion from a container that looked only somewhat like my bottle of sunscreen. Should’ve had the reading glasses on, I guess. Oy. Fortunately, my next toga party with a dermatologist is several weeks away and I’ll have ample time to pale out by then and avoid any stern lectures.
I’ll sign off with another ode to sunscreen, to the tune of “This Magic Moment” from Jay and The Americans…
This tragic moment
So different and so new
Was like any other
Until I missed you
And then it happened
It took me by surprise
I knew that you felt it too
By the look of my fries
Keep the pale hide (keep the pale hide)
Softer than the summer blight (softer than the summer blight)
Everything I wanna have (everything, everything)
Whenever I rolled you right
This magic moment (this magic moment)
When my swings are all online
Won’t last forever
Forever till the end of nine
(this magic moment)
Whoa-oh-oh-oh-oh
Oh-oh-oh-oh-oh
(this magic moment)
Oh-oh-oh-oh
Keep the pale hide (keep the pale hide)
Softer than the summer blight (softer than the summer blight)
Everything I wanna have (everything, everything)
Whenever I rolled you right
This magic moment (this magic moment)
While my swings are all on line
Won’t last forever (this magic moment)
Forever till the end of nine (magic)
Whoa-oh-oh-oh-oh (magic)
Whoa-oh-oh-oh-oh (magic)
Oh-oh-oh-oh (moment)
Oh-oh-oh-oh (magic)
Oh-oh-oh-oh (magic)
Oh-oh-oh-oh-oh (magic)
Oh-oh-oh-oh (moment)
Magic, oh-oh-oh
Magic, oh-oh-oh
Sunday, March 19, 2017
Seventh Heaven
Today is the 7th anniversary of my little blog. Its continuing existence is either evidence of an excessive degree of self-absorption or a celebration of long term survivorship. You be the judge. I’d prefer to believe that because I’ve been blessed with good fortune, every so often I feel an obligation to hold my hand up and be counted among the still-living at The Hotel Melanoma.
My golf game still stinks, partly due to various effects of past treatments, but I’ve lived to a time when a recurrence would no longer be an almost certain death sentence. And I can live with my frequent 3-putts and travails on ‘the beach’. I guess my blogging still makes me happy, as I hope it does a few of you too. Maybe today I’m on temporary furlough from the Hotel Melanoma and am living in seventh heaven. And for that, I’m thankful.
So, I’ll sign off with The Hotel Melanoma rendition of Sheryl Crow’s “If It Makes You Happy”…
I've been long, a long way from here
Put on an onc show, strayed from placebos
And tanked till I was earthly again
I went searching through scrips store jungles
Found melanoma’s frightful, medicine’s snafu
And many good men’s horrid bad end
Well, o.k. I made this up
I promise you I'll never give up
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
You get down, real low down
You stiffen your whole brain, derail your own pain
Well who hasn't been there before?
I come round, around the hard way
Bring you comics in bed, scrape the moles off your head
And serve you fresh post again
Well, o.k. I still get stoned
I'm not the kind of pearl you'd take home
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
We've been far, far away from here
Put on an onc show, strayed from placebos
And everywhere in between
Well, o.k. we get along
So what if right now everything's wrong?
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
My golf game still stinks, partly due to various effects of past treatments, but I’ve lived to a time when a recurrence would no longer be an almost certain death sentence. And I can live with my frequent 3-putts and travails on ‘the beach’. I guess my blogging still makes me happy, as I hope it does a few of you too. Maybe today I’m on temporary furlough from the Hotel Melanoma and am living in seventh heaven. And for that, I’m thankful.
So, I’ll sign off with The Hotel Melanoma rendition of Sheryl Crow’s “If It Makes You Happy”…
I've been long, a long way from here
Put on an onc show, strayed from placebos
And tanked till I was earthly again
I went searching through scrips store jungles
Found melanoma’s frightful, medicine’s snafu
And many good men’s horrid bad end
Well, o.k. I made this up
I promise you I'll never give up
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
You get down, real low down
You stiffen your whole brain, derail your own pain
Well who hasn't been there before?
I come round, around the hard way
Bring you comics in bed, scrape the moles off your head
And serve you fresh post again
Well, o.k. I still get stoned
I'm not the kind of pearl you'd take home
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
We've been far, far away from here
Put on an onc show, strayed from placebos
And everywhere in between
Well, o.k. we get along
So what if right now everything's wrong?
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
If it makes you happy
It can't be that bad
If it makes you happy
Then why the hell are you so sad?
Tuesday, January 17, 2017
Glow Your Own Way
My spouse and I are contemplating a winter getaway, perhaps to a beach in Mexico or a golf course in Arizona, but probably not to Florida where we’re afraid we’d run into way too many other old people. The only thing I know for certain is that I won’t be coming home fried-- and if you too are contemplating a snowbird getaway I hope you won’t either because, trust me on this, you don’t want to be checking into The Hotel Melanoma. Your beach or desert golf ‘glow’ would much better come from your sparkling wit under the influence of a margarita or three than an excessive dose of UV rays. Okay?
Until next time, I’ll sign off with The Hotel Melanoma rendition of Fleetwood Mac’s “Go Your Own Way”…
Loving U
Isn't the right thing to do
How can I ever change skin that I peel?
If I could
Baby I'd give you hide pearled
How can I
When you won't take it from me?
You can glow your own way
Glow your own way
You can call it another sunscreen day
You can glow your own way
Glow your own way
Tell me why
Everything turned a-brown
Blacking up
Placqueing up's all you shouldn’t do
If I could
Baby I'd give you hide pearled
Cover up
Paler skin’s waiting for you
You can glow your own way
Glow your own way
You can call it another sunscreen day
You can glow your own way
Glow your own way
Until next time, I’ll sign off with The Hotel Melanoma rendition of Fleetwood Mac’s “Go Your Own Way”…
Loving U
Isn't the right thing to do
How can I ever change skin that I peel?
If I could
Baby I'd give you hide pearled
How can I
When you won't take it from me?
You can glow your own way
Glow your own way
You can call it another sunscreen day
You can glow your own way
Glow your own way
Tell me why
Everything turned a-brown
Blacking up
Placqueing up's all you shouldn’t do
If I could
Baby I'd give you hide pearled
Cover up
Paler skin’s waiting for you
You can glow your own way
Glow your own way
You can call it another sunscreen day
You can glow your own way
Glow your own way
Tuesday, November 22, 2016
The Skin Crowd
Just for grins and the dancing pleasure of my molemates, here’s The Hotel Melanoma rendition of Dobie Gray’s “The ‘In’ Crowd”…
I'm in with the skin crowd, I glow where the skin crowd glows
I'm in with the skin crowd and I grow what the skin crowd grows
Anytime of the year, don't you hear? Bless benign, baking nein
We breeze up and down the street, we get respect from the people we meet
They make way day or night, they know the skin crowd ain’t out of fight
I'm in with the skin crowd, I know every palest stance
When you're in with the skin crowd, it's so easy to find long pants
Any time of the year, don't you hear? If it's bare, we say prayer
We make every minute count, our care is always the biggest bum out
Other guys imitate us, but the original is still the greatest, skin crowd!
Any time of the year, don't you hear? Spendin' cash, blockin’ rash
I'll show you a real ‘good’ time, come on with me, leave your troubles behind
I don't care where you've been, you ain't been nowhere til you've been in
With the skin crowd, with the skin crowd, skin crowd!
Thursday, November 17, 2016
I Just Want To Thank You
As a blogger and melavangelist, I’ve been quite the slacker of late, preferring to play a lot of golf (rather poorly I should add) over doing anything worthwhile and productive. But the Saturday before Thanksgiving is sort of a ‘cancerversary’ for me, because that was the day in 2003 when I was released from the hospital after completing my last round of biochemotherapy.
Thirteen years of “no evidence of disease”. I’m lucky and blessed, but so often perplexed and sorrowful that all too many of my molemates haven’t been as fortunate as me.
So today, I just want to thank all of the folks who’ve helped me get so many years and miles down Melaroad—especially the medics who talked me into an aggressive and toxic treatment regimen and all of my molemates, particularly my Tutu Brother Mark, who’ve made the journey bearable and, quite often, a joy.
From Nathaniel Rateliff and The Night Sweats…
Spend your years
Spend your time
With all these fears
Not all were mine
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you sweet maties for getting me through
Can’t hide your fears
I can’t hide mine
In spite of all this drear
I think we’re fine
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you gritty maties for getting me through
I was looking back there, Lord
Could have been no one else
I would have been so cold
Graying here by myself
Ever since you found me yeah
Never be anybody else
Yeah maties, yeah
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you
I just want to thank you sweet maties for getting me through
Saturday, September 3, 2016
Cloudy Days
So, I’ve been feeling a little glum since removing myself from a volunteer position in the melanoma nonprofit community. (And losing a stroke on my home course handicap hasn’t helped to improve my cranky mood.) Despite the good intentions of all involved in the endeavor, sometimes these things just don’t work out like you hoped they would and you come to the realization that it’s time to move on and hope you can be more effective elsewhere. But this aging melavangelist ain’t givin’ up just yet. I will seek and find another way to be actively and effectively involved in supporting melanoma research, education and prevention. Have blog and black tutu, will travel!
I strongly suspect I’m far from alone in the melahomie community in wanting to do something to defeat the Black Beast but finding it a challenge to figure out how and where and with whom to best do that. If you’re in the same boat, I’d love to hear from you with your thoughts and ideas on how we survivors can make a real difference.
Until next time, I’ll sign off with the Hotel Melanoma rendition of The Eagles “No More Cloudy Days”…
The Eagles - No More Cloudy Days (Live 2005) by olatoniggg
Sitting by a foggy window
Staring at the pouring rain
Falling down like lonely teardrops
Memories of nothin’ gained
These cloudy days, make you wanna cry
It breaks your heart when somethin’ cleaves and you don't know why
I can see that you've been hurting, maybe I've been lonely too
I've been out here lost and searching, looking for mole pals like you
Now I believe the sun is gonna shine
Don't you be afraid to try again, put your hand in mine?
Baby, I would never make you fry
I would never change your hue
I would never let you brown
We would always seek breakthrough
I know a place where we can go where UV never preys
There’s no more stormy nights, no more cloudy days
I believe in second chances
I believe in angels, too
I believe in new advances
Baby, I believe in you
These cloudy days are coming to an end
And you don't have to be afraid to don golf glove again
Baby, I would never make you fry
I would never change your hue
I would never turn away
We would always seek breakthough
I know a place where we can go where UV never preys
There's no more stormy nights, no more cloudy days
I strongly suspect I’m far from alone in the melahomie community in wanting to do something to defeat the Black Beast but finding it a challenge to figure out how and where and with whom to best do that. If you’re in the same boat, I’d love to hear from you with your thoughts and ideas on how we survivors can make a real difference.
Until next time, I’ll sign off with the Hotel Melanoma rendition of The Eagles “No More Cloudy Days”…
The Eagles - No More Cloudy Days (Live 2005) by olatoniggg
Sitting by a foggy window
Staring at the pouring rain
Falling down like lonely teardrops
Memories of nothin’ gained
These cloudy days, make you wanna cry
It breaks your heart when somethin’ cleaves and you don't know why
I can see that you've been hurting, maybe I've been lonely too
I've been out here lost and searching, looking for mole pals like you
Now I believe the sun is gonna shine
Don't you be afraid to try again, put your hand in mine?
Baby, I would never make you fry
I would never change your hue
I would never let you brown
We would always seek breakthrough
I know a place where we can go where UV never preys
There’s no more stormy nights, no more cloudy days
I believe in second chances
I believe in angels, too
I believe in new advances
Baby, I believe in you
These cloudy days are coming to an end
And you don't have to be afraid to don golf glove again
Baby, I would never make you fry
I would never change your hue
I would never turn away
We would always seek breakthough
I know a place where we can go where UV never preys
There's no more stormy nights, no more cloudy days
Tuesday, August 9, 2016
Reaching Out
A large part of why I’m so glad I eventually wandered out of my lonely, single room at The Hotel Melanoma is that I’ve had the privilege of getting to know one of the true gems of the melanoma community, (Rev.) Carol Taylor. As many of you know, Carol (a/k/a Southern Mama Preacher) founded the Facebook community page Melanoma Prayer Center and it’s been a source of comfort, support and inspiration to thousands of melahomies. Carol has lived a life of service to her family, her church, and the melanoma community—which has made it a great honor for a very flawed and less selfless fellow like me to have been adopted as her big (i.e. much older) brother.
Carol has had quite an influence on the musical content of my little blog, e.g. the occasional disco tune which I’d never have done but for her ‘requests’. But today I’ll stick with my roots in Classic Rock. For Carol, who has done so much to remind me that the true purpose of human life is to serve others, here’s Bob Dylan’s “Gotta Serve Somebody”…
You may be an ambassador to England or France
You may like to gamble, you might like to dance
You may be the heavyweight champion of the world
You may be a socialite with a long string of pearls
But you're gonna have to serve somebody, yes
Indeed you're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody
You might be a rock 'n' roll addict prancing on the stage
You might have drugs at your command, women in a cage
You may be a business man or some high-degree thief
They may call you doctor or they may call you chief
But you're gonna have to serve somebody, yes you are
You're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody
You may be a state trooper, you might be a young Turk
You may be the head of some big TV network
You may be rich or poor, you may be blind or lame
You may be living in another country under another name
But you're gonna have to serve somebody, yes you are
You're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody
You may be a construction worker working on a home
You may be living in a mansion or you might live in a dome
You might own guns and you might even own tanks
You might be somebody's landlord, you might even own banks
But you're gonna have to serve somebody, yes
You're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody
You may be a preacher with your spiritual pride
You may be a city councilman taking bribes on the side
You may be workin' in a barbershop, you may know how to cut hair
You may be somebody's mistress, may be somebody's heir
But you're gonna have to serve somebody, yes
You're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody
Might like to wear cotton, might like to wear silk
Might like to drink whiskey, might like to drink milk
You might like to eat caviar, you might like to eat bread
You may be sleeping on the floor, sleeping in a king-sized bed
But you're gonna have to serve somebody, yes
Indeed you're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody
You may call me Terry, you may call me Timmy
You may call me Bobby, you may call me Zimmy
You may call me R.J., you may call me Ray
You may call me anything but no matter what you say
Still, you're gonna have to serve somebody, yes
You're gonna have to serve somebody
Well, it may be the devil or it may be the Lord
But you're gonna have to serve somebody.
Friday, May 27, 2016
Forever Young
Next month I’ll turn 63. And in the “I’ll never-grow-old” fantasy world of this Baby Boomer, that’s middle-aged.
During my first decade or so of living at The Hotel Melanoma, my life planning horizon didn’t extend beyond my next 90-day or 6-month checkup etc. at the melanoma clinic. And I don’t think that’s the least bit uncommon among my N.E.D. melahomies who are also living with a high risk of recurrence.
But slowly yet surely over the course of the past couple of years I’ve started to contemplate the possibility that I might, just might, actually grow old. Really old. (Although I’m convinced there will always be the ornery juvenile delinquent brain of a seventeen-year-old trapped inside an increasingly frail body.) And if I do, where will I live when I can no longer manage my two-story home in the often-snowy woods? Will my retirement savings keep me stocked with single malt scotch? Will self-driving car technology keep me mobile? When do I start teeing off from the ladies tees? I know that I’m quite lucky and that I ought to be grateful to have such questions rolling around my chemo-fogged brain, when all too many younger lives have been cut way too short by the Black Beast. Meanwhile, I’m still just a ‘kid’ who’s hoping we all grow much, much older while somehow remaining forever young at heart.
For all of my molemates who’ve been laboring so hard to build melanoma awareness this month, here’s The Hotel Melanoma rendition of Bob Dylan’s “Forever Young”…
May God bless and keep you always
May your skin checks show pale hue
May you always do for others
And let others do for you
May you build a ladder from your scars
And climb on every rung
May you stay
Forever young
Forever young
Forever young
May you stay
Forever young
May you grow up to spread whiteness
May you grow up ‘til C’s through
May you always know the truth
And flee tan lights surrounding you
May you always be courageous
Stand upright and be strong
And may you stay
Forever young
Forever young
Forever young
May you stay
Forever young
May your scans always be pretty
May your tweets always persist
May you have a strong foundation
When the winds of changes shift
May your heart always be joyful
May your song always be sung
And may you stay
Forever young
Forever young
Forever young
May you stay
Forever young
During my first decade or so of living at The Hotel Melanoma, my life planning horizon didn’t extend beyond my next 90-day or 6-month checkup etc. at the melanoma clinic. And I don’t think that’s the least bit uncommon among my N.E.D. melahomies who are also living with a high risk of recurrence.
But slowly yet surely over the course of the past couple of years I’ve started to contemplate the possibility that I might, just might, actually grow old. Really old. (Although I’m convinced there will always be the ornery juvenile delinquent brain of a seventeen-year-old trapped inside an increasingly frail body.) And if I do, where will I live when I can no longer manage my two-story home in the often-snowy woods? Will my retirement savings keep me stocked with single malt scotch? Will self-driving car technology keep me mobile? When do I start teeing off from the ladies tees? I know that I’m quite lucky and that I ought to be grateful to have such questions rolling around my chemo-fogged brain, when all too many younger lives have been cut way too short by the Black Beast. Meanwhile, I’m still just a ‘kid’ who’s hoping we all grow much, much older while somehow remaining forever young at heart.
For all of my molemates who’ve been laboring so hard to build melanoma awareness this month, here’s The Hotel Melanoma rendition of Bob Dylan’s “Forever Young”…
May God bless and keep you always
May your skin checks show pale hue
May you always do for others
And let others do for you
May you build a ladder from your scars
And climb on every rung
May you stay
Forever young
Forever young
Forever young
May you stay
Forever young
May you grow up to spread whiteness
May you grow up ‘til C’s through
May you always know the truth
And flee tan lights surrounding you
May you always be courageous
Stand upright and be strong
And may you stay
Forever young
Forever young
Forever young
May you stay
Forever young
May your scans always be pretty
May your tweets always persist
May you have a strong foundation
When the winds of changes shift
May your heart always be joyful
May your song always be sung
And may you stay
Forever young
Forever young
Forever young
May you stay
Forever young
Saturday, April 16, 2016
Just Rewards
Many of we residents at The Hotel Melanoma are all too familiar with ‘Dr.’ Joseph Mercola and his quack claims about the health benefits of exposure to ultraviolet light, false advertising claims made to promote and sell his own line of tanning beds. But it seems that Lyin’ Joe is about to receive the just rewards of his quackery, as this past week the Federal Trade Commission announced a settlement of its false advertising lawsuit against Mercola. Settlement terms include making refunds to buyers of his tanning beds in an amount up to $5.3 million and a promise to stop selling his cancer incubators. Read all about it here.
Mercola is reportedly unrepentant and standing by his claims of the cancer-fighting benefits of tanning bed use. So I can imagine him singing this Hotel Melanoma rendition of Simple Minds’ “Don’t You (Forget About Me)”…
Hey, hey, hey, hey
Ohhhhhohhhhhohhhohhhhwooooo
Won't you come see about C?
I'll be a-prone, tanning you know it baby
Tell me your troubles and doubts
Giving me everything inside and out and
Small change, I’m still a doc shark
Think of the cancer things that we were working on
Glow change may pull us apart
When the light gets into your parts, baby
Won't you, forget about C
Don't, don't, don't, don't
Don't you, forget about D
Will you tan and love me?
Cook my way, never shove me
Rays keep calling, rays keep mauling
Brown, brown, brown
Will you idolize me?
Fall for claims or balk on lies
Rays keep calling, rays keep mauling
Brown, brown, brown, brown
Hey, hey, hey, hey
Ohhhhohhhhohhhohhhhwooooo
Won't you fry and be friend
It's my feeling I’ll win in the end
I won't warn you or touch your pretenses
Vanity, insecurity
Won't you forget about C
I'll be a-prone, tanning you know it baby
Going to take you apart
I'll put us back together at heart, baby
Don't you, forget about D
Don't, don't, don't, don't
Won't you, forget about C
As you walk on by
Will you call my name?
As you walk on by
Will you call my name?
When you walk away
Or will you walk on rays?
Will you walk on fries?
Come on, buy my claims
Will you buy my claims?
I say
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
Blah blah, blah, blah, blah, blah
When you walk on by, and you call my name
Monday, March 28, 2016
Something Good Coming
Back in the Dark Ages of melanoma treatment, 2003 to be exact, I had a close encounter with a Stage IV diagnosis. A CT scan showed a large mass next to my cervical spine. The initial prognosis was quite grim, as further metastasis to my spine, brain and heart was likely. I was told that the only treatment options available at the time, radiation and chemotherapy, might extend my life a few months but would not commute my almost certain death sentence. Lucky for me, and against all odds, the mass turned out to be a benign nerve tissue tumor, not a melanoma tumor. It’s been one troublesome sonofabitch requiring extensive neurosurgery and radiation treatments (and permanent nerve damage has wreaked havoc on a golf swing that was never pretty) but it isn’t a killer.
The state of metastatic melanoma treatment has so very, very much changed for the better since 2003. Today there is real and thoroughly rational hope for long term survival after a Stage IV diagnosis. And I have to believe that we’re nowhere near done with treatment advances and there is something good coming to The Hotel Melanoma. Soon, very soon.
Thinking of my friend Donna today, I’ll sign off with my take on “Something Good Coming” from Tom Petty & The Heartbreakers…
I'm watching the bloggers
Watching the posts
Suddenly I know
What I want the most
And I want to tell you
Still I hold Black
I need some time
Get my life on track
I know that look on your face
But there's somethin' plucky about this place
And there's somethin' good comin'
For you and me
Somethin' good comin'
There has to be
And I'm thinking 'bout Donna
And about her kids
And the way she lived
And the things she did
How she never had a chance
Never caught a break
And how we pay for our skin mistakes
I know so well the look on your face
And there's somethin' plucky about this place
There's somethin' good comin'
Just over the hill
Somethin' good comin'
I know it will
And I'm in for the long run
Wherever it goes
Ridin' the river
Wherever it goes
And I'm an earnest man
Hope’s all I know
You take that away
Don't know where to go
And I know that look that's on your face
There's somethin' plucky about this place
There's somethin' good comin'
For you and me
Somethin' good comin'
There has to be
The state of metastatic melanoma treatment has so very, very much changed for the better since 2003. Today there is real and thoroughly rational hope for long term survival after a Stage IV diagnosis. And I have to believe that we’re nowhere near done with treatment advances and there is something good coming to The Hotel Melanoma. Soon, very soon.
Thinking of my friend Donna today, I’ll sign off with my take on “Something Good Coming” from Tom Petty & The Heartbreakers…
I'm watching the bloggers
Watching the posts
Suddenly I know
What I want the most
And I want to tell you
Still I hold Black
I need some time
Get my life on track
I know that look on your face
But there's somethin' plucky about this place
And there's somethin' good comin'
For you and me
Somethin' good comin'
There has to be
And I'm thinking 'bout Donna
And about her kids
And the way she lived
And the things she did
How she never had a chance
Never caught a break
And how we pay for our skin mistakes
I know so well the look on your face
And there's somethin' plucky about this place
There's somethin' good comin'
Just over the hill
Somethin' good comin'
I know it will
And I'm in for the long run
Wherever it goes
Ridin' the river
Wherever it goes
And I'm an earnest man
Hope’s all I know
You take that away
Don't know where to go
And I know that look that's on your face
There's somethin' plucky about this place
There's somethin' good comin'
For you and me
Somethin' good comin'
There has to be
Saturday, March 19, 2016
A Blogoversary Oldie
I’ve been quite the blogging slacker of late, but I’ve been aroused today from my winter torpor because it’s the 6th anniversary of the ‘grand’ opening of The Hotel Melanoma. I often wonder (while my chemo-soaked brain wanders) just why it is that I keep doing this. I guess I do it because I just ‘love’ the Black Beast and every so often (like this past January) I’m reminded by some vigilant medic that I can’t ever breakup with her. And because I feel obliged to continue to stand up and be counted among the ranks of the very lucky, long term survivors of a complicated relationship with this b***h.
Hoping and praying that the next six years is even better for treatment advances than the last six, I’ll sign off with a little ‘love’ song to our adversary. To the tune of “Let’s Hang On” from Frankie Valli & The Four Seasons…
There ain't no could in our goodbyein'
New drugs take a lot of tryin'
Oh, my fryin’…
Let's hang up on what we've got
Just let go, girl, we've fought a lot
Got a lot of ‘love’ between us
Hang up, hang up, hang up on what we've got
You say you're gonna go and call it quits
Gonna chuck it all and break our ‘love’ to bits
Break it up (I wish you'd ever said it)
Break it up (oh yo, I’ll not regret it)
That little blip of shining on old scans
Cost a fortune, baby
But you know it stands for the ‘love’, (a love to tie and bind ya)
Such a ‘love’ (we just can't leave behind us)
Baby (don't you know?)
Baby (won't you go)
Think it over and stray
Let's hang up on what we've got
Just let go, girl, we've fought a lot
Got a lot of ‘love’ between us
Hang up, hang up, hang up on what we've got
There isn't anything I wouldn't do
I'd pay any price to get all good from you
Pack it up (give me a second learnin')
Pack it up (don't fuel spots while I'm burnin')
You've got me cryin', dyin' at your door
Just shut me out, ooh, let me out once more
Open up (your arms, I need paroled new)
Open up (your heart, oh girl, I drugged you)
Baby, don't you know?
Baby, no, no, no
Think it over and stray
Let's hang up on what we've got
Won't let go, girl, we've fought a lot
Got a lot of ‘love’ between us
Hang up, hang up, hang up on what we've got
Saturday, January 23, 2016
A Sneaky S.O.B.
Last Sunday I was looking like I’d taken a hard punch to my right jaw. (I can think of several people- including my wife- who might want to take a punch at me, but nobody did.) My primary care doc’s diagnosis on Monday was “lymphadenopathy, cervical”. So, after the primary care doc talked to my dermatologist, who in turn talked to my oncologist, I’ll be trucking up to the melanoma clinic next week for a checkup and likely a bonus “fine needle aspiration”, which they always seem to do in the breast cancer clinic where I draw some very quizzical looks from other patients. The initial plan was to do a head/neck CT scan prior to this checkup, but my wonderful insurance company refused to authorize it; but that’s okay with me, I guess, because I would’ve had to pay for it thanks to my sky-high deductible and now maybe I’ll dodge a scan expense.
The strong odds are that my lymph node(s?) are merely enlarged by an excess intake of chocolate over the Holidays. Or single malt Scotch. But then again we all know that melanoma can be one sneaky S.O.B and pop up after years of lying dormant. Be vigilant my friends. No matter how long you’ve been in “no evidence of disease” status, please be watchful and have regular monitoring checkups with a melanoma specialist.
Feeling a touch of melanoma paranoia, I’ll sign off with the Hotel Melanoma rendition of “S.O.B.” from Nathaniel Rateliff & The Night Sweats…
I'm gonna need some docs to help me
I'm gonna need some body scans
I'm gonna need someone to hold me down
I'm gonna need someone to care
I'm gonna writhe and shake my body
I'll start pulling out my hair
I'm going to cover myself with more splashes of goo
And mole buddies gonna give a damn
Son of a bitch, get me a shrink
One more fright is shaking me
Son of a bitch
If I can't scan clean I'm gonna drink my life away
Now for seventeen years I've been growing them black
Seventeen more will bury me
Can somebody please just tie me down
Or somebody get me a goddamn shrink
Son of a bitch, get me a shrink
One more fright
This can't be C
Son of a bitch
If I can't scan clean I'm gonna drink my life away
Hey, Yeah now
My heart is quaking, hands are shaking
Docs are pawing all over me
My heart is quaking, hands are shaking
Docs are pawing all over me
My heart is quaking, hands are shaking
Docs are pawing all over me
My heart is quaking, hands are shaking
Docs are pawing all over me
Son of a bitch, get me a shrink
One more fright
This can't be C
Son of a bitch
If I can't scan clean I'm gonna drink my life away
Son of a bitch, get me a shrink
One more fright
This can't be C
Son of a bitch
If I can't scan clean I'm gonna drink my life away
Yeah ah
Thursday, January 7, 2016
Poke-a-Mole
Just for grins on a wintry day here in the Rockies, The Hotel Melanoma rendition of “Kokomo” from The Beach Boys…
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go,
Fake-bake ya
Off the Florida Keys
There's a place called Poke-a-Mole
That's where you wanna go
To get away from it all
Bodies never tanned,
Topical zinc melting in your hand
We'll seek awning in sun
To the rhythm of a steel drum band
Down in Poke-a-Mole
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go
Ooh I wanna take you down to Poke-a-Mole,
We'll get there fast
And then we'll take it slow
That's where we wanna go,
Way down in Poke-a-Mole.
Doublespeak, that doctor rap mystique...
We'll put out the C
And we'll perfect our chemistry
By and by we'll deny
What’s little left of sanity
Afternoon delight,
Cocktails and moonlit nights
That dreamy look in your eye,
Give me a tropical contact high
Way down in Poke-a-Mole
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go
Ooh I wanna take you down to Poke-a-Mole,
We'll get there fast
And then we'll take it slow
That's where we wanna go,
Way down in Poke-a-Mole.
Port’s all rinsed, I wanna scratch the PICC...
Everybody knows a little place like Poke-a-Mole
Now if you wanna go to get away from it all
Go down to Poke-a-Mole
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go
Ooh I wanna take you down to Poke-a-Mole,
We'll get there fast
And then we'll take it slow
That's where we wanna go,
Way down in Poke-a-Mole.
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go,
Fake-bake ya
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go,
Fake-bake ya
Off the Florida Keys
There's a place called Poke-a-Mole
That's where you wanna go
To get away from it all
Bodies never tanned,
Topical zinc melting in your hand
We'll seek awning in sun
To the rhythm of a steel drum band
Down in Poke-a-Mole
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go
Ooh I wanna take you down to Poke-a-Mole,
We'll get there fast
And then we'll take it slow
That's where we wanna go,
Way down in Poke-a-Mole.
Doublespeak, that doctor rap mystique...
We'll put out the C
And we'll perfect our chemistry
By and by we'll deny
What’s little left of sanity
Afternoon delight,
Cocktails and moonlit nights
That dreamy look in your eye,
Give me a tropical contact high
Way down in Poke-a-Mole
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go
Ooh I wanna take you down to Poke-a-Mole,
We'll get there fast
And then we'll take it slow
That's where we wanna go,
Way down in Poke-a-Mole.
Port’s all rinsed, I wanna scratch the PICC...
Everybody knows a little place like Poke-a-Mole
Now if you wanna go to get away from it all
Go down to Poke-a-Mole
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go
Ooh I wanna take you down to Poke-a-Mole,
We'll get there fast
And then we'll take it slow
That's where we wanna go,
Way down in Poke-a-Mole.
Keytruda, can quake ya, ooh I wanna take ya
Intruduh, skin trauma, come on pretty mama
Opdivo, doc ego,
Baby why don't we go,
Fake-bake ya
Wednesday, December 23, 2015
Helpless
There will be a newly emptied seat at the table at oh so many family Christmas celebrations this week, be it from disease, accidents, acts of terrorism, or the wars our soldiers have been fighting for over a decade. Please honor the true meaning of Christmas, love, by taking a break from all the Holiday hustle and bustle to say a prayer for these families and their lost loved ones.
I’ll sign off until the New Year with a new rendition of “Helpless” from Neil Young and The Band…
There are some homes in North America
Dreams comfort, mem'ries to share
And in my mind I still need a place to go
All my angels are there
Blue new widows resigned to scars
Mela gloom on the rise
Big herds trying to stop the fry
Healthy tanning is salons’ lies
Leave us
Helpless, helpless, helpless, helpless
Babe, can you hear me now?
The chains are locked and tied across the door
Baby, sing with me somehow
Blue new widows resigned to scars
Mela gloom on the rise
Big herds trying to stop the fry
Healthy tanning is salons’ lies
Leave us
Helpless, helpless, helpless, helpless
Helpless, helpless, helpless, helpless
Helpless, helpless, helpless, helpless
Helpless, helpless, helpless, helpless
Thursday, November 19, 2015
Have a Drink on Me
This Saturday is my 12th “cancerversary” of completing biochemotherapy treatments for Stage IIIc melanoma and beginning a very blessed run with no evidence of disease. I so wish I could bottle my good fortune and hand it out by the case to my melahomies. Obviously I can’t, but the drinks are on me Saturday night at the Hotel Melanoma lobby bar.
Hoping that the F.D.A.’s recent approval of Yervoy as an adjuvant treatment for Stage III patients will lead to many, many more treatment success stories like my own, I’ll sign off with my take on AC/DC’s “Have a Drink on Me”…
Frisky, skinned and dandy
With the sass I'm pretty handy
I'm trying to walk the pale line
With panache and cheap rhymes
So join me for a drink, boys
We're gonna make a big noise
So don't worry about tomorrow
Take it today
Forget about the check
We'll get Mel to pay
Have a drink on me
Have a drink on me
Yeah, have a drink on me
Have a drink on me (on me)
Come on
Dizzy, ‘drunk’ and fightin'
On the chemo quite frightnin'
My mass will get no quarter
On risky nights of slaughter
So come on and have a good time
And get blinded out of your mind
So don't worry about tomorrow
Take it today
Forget about the check
We'll get Mel to pay
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me (on me)
Get stoned
Have a drink on me
Have a drink on me (yeah)
Have a drink on me,come on
Oh
Gonna roll around
Gonna hit the ground
Take another swing
Have another drink
Gonna drink it dry
Gonna get me high
Come on all the boys
Make a noise
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me
Have a drink on me
Tuesday, November 10, 2015
Fun with Free Skin Checks
As some of you may have surmised from certain unauthorized photos posted on social media, I participated in a melanoma walk last weekend at The University of Arizona Cancer Center in Tucson. (Yes, golf was most certainly a factor in my choosing this particular event, although the way I played down there I don’t know why.) Having arrived at the event with time to kill before walking, I decided to sashay into the dermatology clinic to take advantage of a free skin check. (And with my new sky-high insurance deductible, courtesy of Obamacare, free is a very good thing indeed.) The looks on the faces of various clinic staff members that were ‘attracted’ by my black tutu were simply priceless.
Until next time, I’ll sign off with the Hotel Melanoma rendition of “Daydream Believer” from The Monkees…
Oh, I could hide 'neath the strings
Of the blue gown as she clings.
The skin check doc’s alarm would never ring.
But it rings from my fries,
Wipe the weep out of my eyes.
Thy shavin' razor's cold and it stings.
Fear the freebie screen.
Oh, what can it mean.
To a rayscreen believer
And a Sol shunning ‘queen’.
You once thought of me
As a white fright on news feed.
Now you know how sappy I can be.
Oh, and our ‘good times’ start and end
Without dollar one to spend.
But how much, baby, do we really need.
Fear the freebie screen.
Oh, what can it mean.
To a rayscreen believer
And a Sol shunning ‘queen’.
Fear the freebie screen.
Oh, what can it mean.
To a rayscreen believer
And a Sol shunning ‘queen’.
Fear the freebie screen.
Oh, what can it mean.
To a rayscreen believer
And a Sol shunning ‘queen’.
Fear the freebie screen.
Oh, what can it mean.
To a rayscreen believer
And a Sol shunning ‘queen’.
Thursday, October 29, 2015
Our Girl
Happy First Birthday in Heaven, my friend! For Donna, to the tune of “My Girl” from The Temptations…
We've got sunshine on a cloudy day
When it's cold outside we’ve got the month of May
Well I guess you'd say
What can make us feel this way?
Our girl (our girl, our girl)
Talkin' 'bout our girl (our girl)
We've got so much honey the bees envy we
We’ve got a sweeter song than the birds in the trees
Well I guess you'd say
What can make us feel this way?
Our girl (our girl, our girl)
Talkin' 'bout our girl ( our girl ooh)
Hey hey hey
Hey hey hey
Ooh yeah
We don't need no money, fortune, or fame (ooh hey hey hey)
We’ve got all the riches baby her fans can claim (oh yes I do)
I guess you'd say
What can make us feel this way?
Our girl (our girl, our girl)
Talkin' 'bout our girl (our girl)
(Talkin' 'bout our girl our girl) We've got sunshine on a cloudy day
With our girl (Our girl)
(Talkin' 'bout our girl our girl) We've even got the month of May
With our girl (our girl, woah)
She's all we can think (our girl)
(Talkin' 'bout our girl our girl)
Talkin' 'bout, talkin' 'bout our girl (our girl, woah)
Saturday, October 24, 2015
For Donna
Too sad and hollow to find the right words of remembrance right now, so just my rendition of James Taylor’s “Fire and Rain”…
Just yesterday evening, they let me know you were gone.
Donna, the fans you made did descend on you.
I walked out this morning and I wrote down this song,
I just can't remember all the friends of you.
I've seen fire and I've seen rain.
I've seen sunny days that I thought would never end.
I've seen lonely times when I could not find a friend,
But I always thought that I'd see you again.
Won't you look down upon me, Jesus,
You've got to help me make a stand.
You've just got to see me through another day.
My heart is aching and my soul’s in crash land,
And I won't make it any other way.
Oh, I've seen fire and I've seen rain.
I've seen sunny days that I thought would never end.
I've seen lonely times when I could not find a friend,
But I always thought that I'd see you again.
Been walking my mind to an easy time,
My back turned towards the sun.
Lord knows when the mole wind blows it'll turn your head around.
Well, there's hours of time, got the megaphone primed, to talk about things to come.
Sweet dreams of frying machines in pieces on the ground.
Oh, I've seen fire and I've seen rain.
I've seen sunny days that I thought would never end.
I've seen lonely times when I could not find a friend,
But I always thought that I'd see you lady, one more time again, now.
Thought I'd see you one more time again.
There's just a few things coming my way this time around, now.
Thought I'd see you, thought I'd see you, fire and rain, now.
Tuesday, October 20, 2015
I Love Doctor Mole
I finally stopped procrastinating and made an appointment with my favorite university hospital dermatology clinic (where I don’t compete with tattoo removals and other cosmetic stuff for an appointment slot). So next month it’ll be time to get naked in front of young female dermatology residents who look to me like they’re young enough to be my granddaughters. I should feel sorry for these kids for having to make a close inspection of my tattered and unprepossessing carcass. But I don’t, because they chose this line of work and on completion of their residency training will be making the big bucks. And some melanoma researcher friends have placed dibs on any melanoma tissue samples I may spawn in the future, so if I have a new primary at least some good may come out of this appointment.
Looking forward to having the most fun an old fellow can hope to have in public without risking an indecent exposure charge, I’ll sign off with The Hotel Melanoma rendition of Joan Jett’s “I Love Rock ‘n’ Roll”…
I saw her standin' there by the mole map machine
I knew she must a been about seventeen
Heart beat was goin' strong
Wearin' my fav’ sarong
An' I could tell it wouldn't be long
Till she was with me, yeah me,
An' I could tell it wouldn't be long
Till she was with me, yeah me, singin'
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
She smiled so I got up and asked for her name
That don't matter, she said,
'Cause “Skin Doc”’s nickname
Said can I show you mole where C can be ingrown
An' next we removin' on
She was with me, yeah me
Next we removin' on
She was with me, yeah me singin'
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
Said can I show you mole where C can be ingrown
Next we're viewin' on
She was with me, yeah me
And we'll be viewin' on
An' singin' that same old song
Yeah with me, singin'
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
I love Doctor Mole
So put some younger eyes on my boondocks, baby
I love Doctor Mole
So come an' take your time an' lance at me
Tuesday, September 29, 2015
We Can Be Together
Pinktober is kind of a tough month for the inmates at The Hotel Melanoma. It’s not that we don’t detest breast cancer (and every other cancer) and hope and pray for a cure. We surely do. It’s because Corporate America will be sticking a pink ribbon on just about anything and everything in hopes of pushing more products out the door, while claiming it’s to promote breast cancer awareness, and then continue to largely ignore melanoma and every other form of cancer for the next eleven months. The unintended (I hope) message is that the rest of us at The Hotel Carcinoma just don’t count. And that sometimes hurts more than a bit.
But I think we at The Hotel Melanoma will continue to hang together this coming month and not let up on our individual little campaigns to educate the uninformed about the Black Beast and tear down the walls of this place. I myself am considering a counter-revolutionary campaign of getting a few thousand black ribbon stickers and randomly placing them on products displayed down at my local Kroger chain grocery store. Anyone care to join me?
Until next time, I’ll sign off with The Hotel Melanoma rendition of Jefferson Airplane’s “We Can Be Together”…
We can be together
Ah you and me
We should be together
We are all outlaws in the eyes of America
In order to survive we heal, treat, cry, gorge, shed, guide and feel
We are sunscreened, flawless, beauteous, stage 4 pests, shirty, not silent and young
But we should be together
Come on all you people standing around
Our life's too fine to let it die and
We can be together
All your silent mockery is
Target for your enemy
And your enemy is
We
We are forces of chaos and anarchy
Everything they say we are we are
And we are very
Proud of ourselves
Up against the wall
Up against the walls (motherfucker)
Tear down the walls
Tear down the walls
Come on now together
Get it on together
Everybody together
We should be together
We should be together my friends
We can be together
We will be
We must begin here and now
A new confidence of worth and fire
Come on now gettin higher and higher
Tear down the walls
Tear down the walls
Tear down the walls
Won't you try
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