Introduction

The "Hotel Melanoma" moniker is a metaphor for living with my particular brand of cancer. Except for those lucky few of us deemed "cured", all we cancer survivors are guests of one of the many, many branded hotels in the "Hotel Carcinoma" chain. We can check out any time we like, but we can never leave. Meanwhile, let's be livin' it up; and please support cancer education, prevention, and treatment research.



Tutu Brothers

Friday, April 15, 2011

Thoroughly Chilled


With a “no worries” checkup season behind me, and having just returned from five days of wasting away under a palapa hut, I’m feeling kind of chilled today. So here’s my song of the day to the tune of Jackson Browne’s “Take it Easy”…

http://www.youtube.com/watch?v=9kTAT4vj_hI


Well I’m a-running up the road trying to loosen my load
I’ve got seven doctors on my mind
Four that want to bill me, two that tried to kill me
One says he’s a friend of mine

Take it easy, take it easy
Don’t let prognoses of disease drive you crazy
Lighten up while you still can
Don’t even try to understand
Just find a place to make your stand and take it easy

Well I’m a-waitin’ at the clinic that treats my melanoma
It’s such a fine sight to see
And a nurse, my lord, with a big clipboard
Comin’ down to take a look at me

Come on baby, don’t say maybe
I’ve got to know if your sweet cure is gonna save me
We may lose and we may win
But we will never be here again
Open up I’m signin’ on to take it easy

Well we’re a-running up the road trying to loosen our load
Got a world of trouble on our minds
Lookin’ for a new cure that gives us a future
They’re just a little hard to find
Take it easy, take it easy
Don’t let prognoses of disease drive you crazy
Come on baby, don’t say maybe
I’ve got to know if your sweet cure is gonna save me

You know we want it easy
We oughta take it easy

Thursday, April 7, 2011

Melanoma Dreamin'

When asked what the heck it is that I do, I usually mumble something about being a recovering attorney, land trust volunteer, and blogger-- and then try to change the subject. (This is a more positive response than the full truth, which is that-- except during skiing and golfing seasons-- I’d sometimes rather be gainfully employed.) Consequently, I haven’t had to suffer through a performance review for quite some time and nobody cares about my billables anymore. But I miss the flagelation. So I thought I’d do a self-review of my performance as a patient during my recent checkup season of March Madness, as measured against my aspirational New Year’s Resolutions published this past December:

Accomplishments

■ I did not use Valet Parking during any visits to the “Name of Rich Oil Guy” Cancer Pavilion, so nobody who’s currently ill had to wait for service while my car was parked.
■ I did not grumble about having to fill out duplicative forms that I’ve completed dozens of times during past visits, even though I still don’t have any body piercings or metallic implants.
■ I completed my MRI without pharmaceutical assistance.
■ Mr. Schwannoma is “stable”, although I deserve no credit for that.
■ The melanoma doc and radiation doc think I’ve become a boring patient.

Areas for Needed Improvement

■ I just could not resist asking nurses and technicians whether they had detected a pulse or if any warm blood had been found in my veins, and I asked the resident who showed me the MRI scan to call my wife and report seeing a brain.

■ I told the MRI tech that I’d prefer an injection of single malt scotch into that IV line rather than contrast dye.

■ I did not react well when one of my appointments was unilaterally rescheduled.

Performance Improvement Plan

■ Screw it, I’m just not ever going back there again.

Overall Performance Rating (On a Scale of 1 to 5, 1 Meaning “Fire This Patient” and Nobody’s a 5)

■ 2.1 (But when it comes to being a patient, I’d rather be lucky than good!)

I’ll end March Madness with a song, to the tune of “California Dreamin’” by The Mamas and The Papas…

http://www.youtube.com/watch?v=dN3GbF9Bx6E


All my moles are brown
(All my moles are brown)
And my skin is gray.
(And my skin is gray).
I've been to the doc
(I've been to the doc)
On a checkup day.
(On a checkup day).

I'd be safe and warm
(I'd be safe and warm)
if I was in the rays
(If I was in the rays)
Melanoma dreamin'
(Melanoma dreamin') on such a checkup day.

Stopped in to the doc’s I hired along the way.
Well I got down on my knees
(got down on my knees)
And I began to pray.
(I began to pray).
You know the doctor likes me pale.
(doctor likes me pale).
He knows I'll stay that way.
(knows I'’ll stay that way).
Melanoma dreamin'
(Melanoma dreamin') on one more checkup day.

All my moles are brown
(All my moles are brown)
And my skin is gray.
(And my skin is gray).
I've been to the doc
(I've been to the doc)
On a checkup day.
(On a checkup day).

If I didn't need him
(If I didn't need him)
I could leave today.
(I could leave today).
Melanoma dreamin' (Melanoma dreamin') on one more checkup day,
Melanoma dreamin' on one more checkup day,
Melanoma dreamin' on one more checkup day.

Wednesday, April 6, 2011

Highway Hypnosis

My March Madness checkup season has extended into April, due to a rescheduled (not by me) appointment. So, I’ll be hitting the highway tomorrow to go see my favorite melanoma specialist and needed some new road music to pass the time. And what could be a better song for rollin’ down the highway than the Allman Brothers’ “Ramblin’ Man”…

http://www.youtube.com/watch?v=1x28jaeyX2s


Lord, I have borne a gamblin' tan
Tryin' to keep on livin' and doin' the best I can
And when comes to peelin' I hope you'll understand
That I have scorned the tannin' plan

Well my doctor was a fellow up in Denver
And he wound up being stuck with my case
And when he heard me askin’ dumb things ‘bout my fate
Big old frown upon his face

Lord, I have borne a gamblin' tan
Tryin' to keep on livin' and doin' the best I can
And when it comes to peelin' I hope you'll understand
That I have scorned the tannin' plan

Aw-right!

I'm on my way to do those screens this mornin'
Headin’ for my checkup look and see
They're always havin' a big time frown at my bio
Lord, them cancer nurses hate the sight of me

Lord, I have borne a gamblin' tan
Tryin' to keep on livin' and doin' the best I can
And when it comes to screenin' I hope you'll understand
That I'm no more a tannin' man

Lord, I was born a tannin' man
Lord, I was born a tannin' man
Lord, I was born a tannin' man
Lord, I was born a tannin' man

Monday, April 4, 2011

A Plea to Management

Ever feel like you’re living in one of the “budget” or “economy” hotels in the Hotel Carcinoma chain? Here’s a musical plea to the management of this chain for just a little more brand awareness for this Hotel, sung to the tune of The Rolling Stones’ “Beast of Burden”…

http://www.youtube.com/watch?v=-tRdBsnX4N4


I'll never be your least of burdens
My gang is large and it's a hurting
All I want is for you to find a cure for me

We'll never be your least of burdens
We've fought for years our cause is hurting
All we want is for you to come cure this beast

Ain’t we vogue enough
Ain’t we big enough
Ain’t we pink enough
Are you too blind to see

Our cancer is a beast of burden
So let's get down and work for certain
More money from rich donors
Come on doctors make sweet cures for we

Ain’t we vogue enough
Ain’t we big enough
Ain’t we pink enough
Are you too blind to see

Oh little cancer
Pretty, pretty, pretty, pretty, cures
Pretty, pretty
Such a pretty, pretty, pretty cure
Come on donors please, please, please

I'll tell you you can put us out on the street
Put us out with no shoes on our feet
But, put it out, put it out
Put it out of misery

Yeah, all this sickness we can suck it up
Throw it all at us we can shrug it off
There's one thing sponsors that we don't understand
You keep on telling us we ain't your kind of brand

Ain't I rough enough, oh sponsors
Ain't I big enough
Ain't I pink enough in vogue enough
Oh please

We'll never be your least of burdens
We'll never be your least of burdens
Never, never, never, never, never, never, never be

We'll never be your least of burdens
We’ve fought for years our cause is hurting…

Friday, April 1, 2011

April Fools!

Once upon a time, a good joke told by my favorite oncologist flew right by me because my brain was working on a 10-second delay. I was in the clinic for a checkup about 10 days after completing a fourth and final round of biochemotherapy. My doc bounded into the exam room with a grin and announced “Rich, congratulations, you’re our thousandth patient to complete biochemo and you’re the lucky winner of a fifth round!”. I nearly fainted before he explained he was just kidding. To celebrate April Fools’ Day, I’ve put this tale to music to the tune of Procol Harum’s “Whiter Shade of Pale” from 1967’s “summer of love”…

http://www.youtube.com/watch?v=Mb3iPP-tHdA

I did my last infusion,
Turned cartwheels 'cross the floor.
I was feeling kind of seasick,
My doc joked ‘bout one more.
The room was spinning harder,
As the ceiling flew away.
When I called out for an Ativan,
The nurses brought a tray.

And so it was that checkup,
As my doctor told his tale,
That my face at first just ghostly,
Turned a whiter shade of pale.

He said there was no reason,
And the truth was plain to see
That I’d finished all my sixteen days,
And could just let it be
All of sixteen big infusions
That were aiming at the beast.
And although my brain was working,
It just did not get the least.

And so it was that checkup,
As my doctor told his tale,
That my face at first just ghostly,
Turned a whiter shade of pale.


For the record, I was not in San Francisco for the “summer of love” because I was only fourteen and my parents wouldn’t let me go.